‘I wake up every day fearing I could die after symptoms no-one believed’

A young woman from South Lanarkshire, Scotland, is living in constant fear and uncertainty due to multiple brain aneurysms that could rupture at any moment. Amber Ford, 31, described herself as a healthy individual before experiencing various health issues in 2018. Initially diagnosed with mumps and Bell’s palsy, Amber’s health continued to deteriorate, leading to extreme fatigue, severe headaches, vision disturbances, and episodes of choking on vomit during sleep.
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Despite seeking medical help and undergoing scans, Amber felt dismissed by healthcare professionals, even being told she may need psychiatric treatment. Subsequent scans in April 2024 revealed up to three aneurysms in her brain, with surgery to address them carrying significant risks such as stroke, disability, or death. Amber’s plight has prompted her to seek treatment from a specialist in the US, leading her to start a fundraising campaign to cover the costs involved.
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Unsure of the extent of her condition without further invasive procedures, Amber faces a challenging decision between risky surgery to cut off blood supply to the aneurysms or opting for no intervention, despite the constant fear of them rupturing. Her situation is compounded by a family history of brain aneurysms, with her grandmother passing away from a similar condition at a young age.

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Amber’s determination to regain control over her life and pursue treatment abroad underscores the emotional toll of living with such a precarious health condition. Launching a GoFundMe page in the hopes of accessing specialised care, she expressed her desire to lead a normal life, free from the overwhelming anxiety and restrictions imposed by her condition.

Amidst ongoing health struggles, Amber’s story serves as a poignant reminder of the resilience and bravery displayed by individuals facing daunting medical challenges. The unwavering support of her community and the generosity of those contributing to her fundraising efforts highlight the power of solidarity in times of adversity. Amber’s journey exemplifies the strength and courage required to navigate life-altering health crises, inspiring others to confront their own adversities with determination and hope.

The complexities of managing a rare and life-threatening condition like multiple brain aneurysms shed light on the importance of access to specialised healthcare and innovative treatment options. Amber’s quest for a second opinion from a foreign expert illustrates the lengths individuals may go to in pursuit of better health outcomes. Her story resonates with many grappling with chronic illnesses or rare diseases, emphasising the significance of advocacy, research, and support in improving patient care and quality of life.

As the challenges of living with a potentially fatal condition persist, Amber’s resilience and optimism offer a beacon of hope for those navigating similar medical uncertainties. By sharing her journey and seeking assistance from a global network of well-wishers, she embodies the spirit of determination and perseverance in the face of adversity. Amber’s courage in confronting her fears and taking proactive steps towards treatment serve as a testament to the human capacity for resilience and unwavering hope in the midst of uncertainty.