A young woman in the US has not eaten a full meal for over a year due to a rare condition that has left her stomach paralysed. Addeson Stanley, 20, first noticed something was wrong in May 2021 when she began experiencing symptoms such as nausea, bloating, and early satiety. Initially attributing these symptoms to the Epstein-Barr virus she had recently contracted, Addeson sought medical help when she lost 35 pounds in just six months. Despite initial reassurances from a doctor that it was likely the virus passing through her system, Addeson’s symptoms persisted.
In July 2021, Addeson consulted a specialist who discovered that her gallbladder was paralysed, leading to its removal in August 2021. However, her symptoms reappeared, and it was later diagnosed that she had gastroparesis – paralysis of the stomach. Since then, Addeson has been fed via a surgical tube but yearns for normal meals, particularly missing her favourite fruits and vegetables. Describing her current diet as a “pleasure diet,” she explains that she can only tolerate processed foods, soft foods, and yoghurts due to her condition.
Despite the challenges, Addeson remains hopeful for the future, aiming to raise awareness about her condition and the impact it has had on her life. Adjusting to life with a feeding tube as a teenager was difficult, but with the support of her family, friends, and therapy, she has been able to navigate the complexities of her condition. The journey has been tumultuous, with Addeson undergoing various treatments and dietary changes in the hope of one day being able to eat normally again.
Addeson’s story sheds light on the struggles faced by individuals with rare medical conditions and highlights the importance of ongoing research and support for those living with chronic illnesses. As she continues her journey towards improved health, Addeson’s resilience and determination serve as an inspiration to others facing similar challenges.