I waited 12 months for a new heart, I could never prepare myself for what happened next

Steve Evans, a resident of Ystradgynlais, had his life changed forever when he discovered he had a genetic heart condition in his early 40s. Unaware of his condition until feeling unwell while walking his dog in 2013, he was rushed to the hospital where doctors found his heartbeat dangerously erratic. Steve underwent a procedure called electrical cardioversion to treat arrhythmogenic cardiomyopathy and had an implantable cardioverter defibrillator (ICD) fitted in his chest to regulate his heart rhythms.

Despite leading a relatively normal life, Steve’s condition worsened in 2017, leading to extreme pain triggered by his ICD, ultimately resulting in him being placed on the heart transplant list in 2022. After a long 12-month wait and several false alarms, Steve finally received a heart transplant in November 2023 at Harefield Hospital. However, he faced complications post-surgery, falling gravely ill with sepsis and needing daily blood transfusions during his six-week hospital stay.

Following a challenging recovery that included relearning how to walk, Steve has defied the odds and plans to participate in a 61-mile bike ride to raise funds for the British Heart Foundation and Morriston Hospital cardiac unit. Embracing his passion for cycling, which helped in his physical rehabilitation, Steve aims to support organizations that have been instrumental in his journey from living on the edge to leading a more normal life post-transplant.

Heart transplants remain crucial in saving lives, with the British Heart Foundation funding research to enhance the success of such operations. Steve’s story serves as a testament to the resilience and determination of individuals facing life-threatening conditions, inspiring others to overcome challenges and give back to the community. As he prepares for the London to Brighton Off Road Bike Ride, Steve epitomizes the strength and courage required to navigate the complexities of heart disease and emerge stronger on the other side.