Doctors said my son was just a fussy eater. But we always knew the truth

A Cardiff mother is advocating for greater awareness and understanding of eating disorders and mental health issues in children after encountering difficulties in obtaining support for her nine-year-old son. Jodie Morris, 32, reveals that her son’s avoidant/restrictive food intake disorder (ARFID) and anxiety were initially dismissed by medical professionals and educators, leaving her feeling isolated and frustrated.
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Jodie’s son, Jae, developed disordered eating behaviours following a bout of sickness at the age of six, linked to his emetophobia (fear of vomiting). Despite persistent efforts to seek help, Jae’s condition went unrecognised until January 2024 when he was diagnosed with an anxiety disorder. It was not until June 2024 that Jae received a formal diagnosis of ARFID, an eating disorder unrelated to body image concerns.
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ARFID can manifest in various ways, often stemming from a negative past experience with food, leading to aversion or restriction of certain foods. Jodie observed alarming changes in Jae’s behaviour, such as hiding or discarding food, avoiding meals, and withdrawing from social activities. These signs, coupled with his anxiety, prompted Jodie to seek professional assistance.

Navigating the healthcare system proved arduous for Jodie, with multiple referrals being rejected by Child and Adolescent Mental Health Services (CAMHS) before a private eating disorder specialist recognised Jae’s condition. Despite facing setbacks and dismissals, Jodie persisted in advocating for her son, eventually securing a formal diagnosis of ARFID in mid-2024. This validation brought immense relief and a sense of vindication for Jodie, who had felt invalidated and labelled a “crazy mum” during the arduous process.

Jae’s struggles extended beyond medical settings, impacting his schooling and social interactions. The anxiety and disordered eating behaviours he exhibited made it challenging for him to eat with peers, leading to isolation during lunchtimes. Only after receiving a diagnosis did the school provide the necessary support, highlighting the importance of understanding and addressing children’s mental health concerns within educational environments.

Jodie’s perseverance ultimately paid off, as Jae commenced treatment for his anxiety and nutritional needs under the care of specialists. However, Jodie underscores the pressing need for increased awareness and education on childhood eating disorders and mental health issues, both in schools and healthcare settings. She emphasises that her relentless advocacy stemmed from a lack of awareness and support available for young individuals facing similar challenges.

As Jodie continues to advocate for her son and raise awareness about ARFID, she hopes that sharing their story will prompt positive changes in how such conditions are recognised and addressed within communities. By shedding light on their journey, Jodie aims to inspire others to advocate for proper support and understanding for individuals grappling with eating disorders and mental health struggles from a young age.