‘Doctors mistakenly took out my appendix as I fought for real diagnosis’

A woman from Bishop’s Cleeve, Gloucestershire, Sophie Spindler, shares her story of years of medical misdiagnosis and “medical gaslighting”, culminating in her unnecessary appendix removal. Sophie, now 33, was initially diagnosed with polycystic ovary syndrome (PCOS) at 15 after experiencing severe pain. Despite feeling her symptoms were not solely related to PCOS, doctors suggested various other causes like kidney stones and appendicitis. Sophie eventually had her appendix removed during her university studies, only to be diagnosed with endometriosis at 24 after persistent symptoms.

Sophie’s struggles with infertility led her and her husband, Daniel, to seek treatment at TFP Oxford Fertility Clinic, where they were informed of their slim chances of conceiving naturally. However, after undergoing IVF treatments, Sophie gave birth to two boys, Luca and Oakley, defying the odds. She now advocates for women’s health awareness and empowerment, emphasising the importance of being one’s own advocate in medical settings. Sophie aims to create spaces for women to feel empowered and believes in the strength and bravery of women.

Reflecting on her medical journey, Sophie recounts the debilitating symptoms of PCOS that often left her bedbound and feeling helpless due to the lack of information and support available. Her experiences of being dismissed and not taken seriously resonate with many women facing similar challenges with their health. Despite the hardships, Sophie’s journey led to the joy of motherhood, and she hopes to inspire others to speak up and advocate for themselves in medical settings.

Sophie’s story sheds light on the importance of early diagnosis and effective treatments for conditions like endometriosis, PCOS, and infertility. She encourages everyone to be proactive in their healthcare journey and not shy away from seeking answers and support when needed. Sophie’s resilience and determination serve as a beacon of hope for those facing similar struggles, showcasing the power of perseverance and self-advocacy in navigating the complexities of women’s health.